The Biobank data leak: Privacy, knowledge and the humility of faith over sight

Silhouette and Code

Our discussion today begins with the concerning news that a world-leading medical-records database, the UK’s Biobank, has suffered an embarrassing leak after hundreds of thousands of confidential records were put up for sale on a Chinese website. Biobank is a pioneering collection of data from half a million Brits, who altruistically donated their records, blood, DNA and more for medical research. But how can we balance the competing demands of strict medical confidentiality with the growing need for big data for both cutting-edge research and thrusting commercial development? Is privacy a particularly Christian idea anyway? Should we celebrate these altruistic souls for their service despite the personal risk of leaks? And what does the Biblical narrative and the limitations God places on his image-bearers have to say about our modern grasping for all-encompassing knowledge?

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